Support to Sustain You
Some feel privileged to serve a loved one at their most vulnerable time. Many also feel afraid, tired and overwhelmed at times. And most people feel it all in one day. It's okay; these feelings are normal. The important thing is to have the tools and resources you need to cope with the natural ebb and flow of your emotions.
Please find the support you need in the links below, and be sure to share them with family and friends.
Frequently Asked Questions
- Who takes care of my loved one?
It depends on your preferences and your situation. Routine daily caregivers can be family members, neighbors, friends, church members, hired caregivers or a combination. Caregivers are vital in keeping the hospice care team informed about your loved one's physical and emotional changes.
Get hands-on training and a handbook to guide you in the special care your loved one will need. Your hospice care team will visit regularly, and you can reach them 24 hours a day, seven days a week by calling (407) 379 -0311.
Is someone always with my loved one?
After you've met with an admissions nurse, the case manager in charge of your loved one's care will contact you within 24 hours to talk through care details and determine visit needs. The caregiver designated by your loved one or family provides daily care with support from the hospice team.
The only time a hospice member would be assigned in eight-hour shifts is if your loved one is having uncontrolled symptoms and needs continuous care. This will be assessed by your nurse for a physician to approve.
- How does hospice manage pain?
Hospice nurses and doctors use the latest techniques to relieve your loved one's pain and other symptoms. A combination of medications, counseling and therapies will help your loved one feel comfortable and at ease.
- Do we need special equipment at home before hospice begins?
Your hospice care team will work with you to see what equipment your loved one may need right away and in the near future. And they'll also make delivery arrangements for the items, so you can focus on being there for your loved one without the worry of making phone calls. We're here to make your experience as compassionate, seamless and reliable as possible.
- Are food and water withheld?
No, but your loved one's appetite will naturally decrease. This is a normal part of the process. It's not painful or uncomfortable, and your loved one is always in control of their own food and water intake.
- Are all hospices the same?
Medicare requires certified hospices to provide the minimum requirements for care. But the quality and quantity of services vary greatly. It helps to research, ask friends for recommendations, and ask hospices questions to help determine which one is right for you and your loved one.
- If my loved one gets better, can we return to regular medical treatment?
Yes. Anyone under hospice care can choose to continue hospice care or return to curative therapy at any time. Medicare and most private insurance will allow additional coverage for this purpose.
- Do you assist our family after our loved one dies?
Yes. Turn to us for continuous support. We'll follow your family for as long as you need us. Find individual counseling, grief support groups, workshops, social groups and literature to support you and your family.
- How much does hospice cost?
It's a question some hesitate to ask, but it's important to know. Hospice services are covered under Medicare Part A, Medicaid and most private insurances. This benefit covers hospice services, medications, supplies and equipment related to your loved one's illness. There may be co-pays, co-insurance or a deductible under insurance plans. Your care team will work with you, your insurance providers and other resources to help your family receive all available benefits. We'll also help if your family is without insurance coverage or if you are unable to pay.
A nurse is available 24 hours a day, seven days a week to answer your call.
Each person’s journey is unique, but there are some common signs that appear as your loved one's health and independence decline. Your Hospice Care Team will help you understand signs to watch for and what to expect. Please call us with any questions, or to report any changes in your loved one’s condition. When you call, please be ready to tell the nurse:
- You loved one’s name
- Your care team color
- Your name
- Your phone number