Whole Care for the Whole Child
Sometimes kids and their families need extra help to navigate multiple, ongoing medical issues that require the expertise of more than one specialist. AdventHealth for Children, formerly Florida Hospital for Children, understands how daunting multiple health conditions can be, especially when it impacts your child and even more so when one course of treatment affects another. Our Coordinated Care for Kids program is designed to ensure that children with special health care needs receive the evaluation, treatment and overall attention they need to ensure the best possible outcomes.
More information on our different program options can be found below, and you can call 407-303-6920 to reach our clinic or request an appointment below.
- Complex Care for Children
Our complex pediatric care program focuses on providing your child with the full continuum of care that he or she needs according to their own unique and evolving needs. For example, our multidisciplinary team may provide evaluation and treatment for a child with a brain injury, spinal cord issue, heart defect or complex wound. We also provide complete developmental assessments, pulmonary assessment and treatments for children whose medical conditions require respiratory assistance including a ventilator, IV medication or non-invasive respiratory monitoring.
- Multidisciplinary Clinics
Many complex childhood diseases require close collaboration between specialists in multiple, specific areas of expertise. Typically, the process of diagnosing and developing a multidisciplinary pediatric care plan can take weeks or months as your child meets with each doctor separately and those providers confer about the desired treatment plan. But the Multidisciplinary Clinics at AdventHealth for Children give you access to a team of health care experts that reviews your child’s diagnosis and works with you to create a treatment plan all at the same location and time.
Children who are born with cosmetic deformities of the face, head or neck can receive life-changing care from the pediatric surgeons at AdventHealth for Children. From a cleft lip or palate to an ear, nasal or vascular deformity, our physicians have the skill and expertise to address the issue and help kids look, feel and function normally. In fact, ours is the only craniofacial and cleft palate clinic in Central Florida to employ state-of-the-art endoscopic procedures performed by both pediatric neurosurgical and plastic surgical doctors, each with at least 20 years of experience.
Our comprehensive services include:
- ENT (Ear, Nose and Throat)
- Intra-operative CT and MRI
- Minimally Invasive/Endoscopic Repair
- Oral surgery
- Parent Support Group
- Speech Occupational Therapy
AdventHealth for Children has the second-largest neurofibromatosis clinic in the country, with more than 400 patients visiting us each year. Our multidisciplinary pediatric care team provides coordinated diagnosis, support and education, access to clinical trials, specialty referrals, condition monitoring and follow-ups, plus genetic counseling and more. A genetically transmitted disorder in which nerve tissue grows tumors that may be harmless or cause serious damage to nerves and other tissues, neurofibromatosis is a serious condition that requires specialized medical assistance to keep under control.
Our team has years of experience in managing the progression of neurofibromatosis, including the following issues:
- Complications From Tumor Formation
- Abnormal Spine and Bone Development
- Chronic Pain Management
- Cosmetic Abnormalities Requiring Surgery
- Cognitive or Behavioral Changes
- Benign and Malignant Tumors
- Pediatric Palliative Care
Our pediatric palliative care specialists include doctors, nurses and social workers who work as a team to keep your child as comfortable as possible. We focus on ensuring each person’s quality of life by relieving pain and stress in a compassionate and family-centered environment.
Our pediatric palliative care team provides comprehensive management of your child’s and family’s unique needs, including:
- Spiritual, emotional and psychological support
- Help making tough decisions about treatment options
- Coordination with all health care providers caring for the child and family
- Management of pain and symptoms
Our Medical Director
Ben Guedes, MD
Dr. Guedes has been practicing medicine in Central Florida since 1983. He has served as the medical director of both the Pediatric Intensive Care Unit and the Pediatric Medical-Surgical Unit at Florida Hospital for Children. He specializes in providing exceptional care to children with complex medical issues.
We’re dedicated to providing comprehensive, compassionate complex care for children. Our providers are leading specialists in complex pediatric conditions including neurofibromatosis, craniofacial disorders, pediatric cardiac care, pediatric palliative care and more. We never forget that a health care setting can be an intimidating place for a child, and we go the extra mile to put the whole family at ease.
For Our Most Special Patients
Our multidisciplinary pediatric care specialists provide compassionate and trusted care that’s designed to ensure children with multiple health conditions or special health care needs receive care that is accessible, coordinated, compassionate, family-oriented and culturally sensitive.
Caring for the Whole Family
Now is the time for you to focus on your child, not logistics. Our multidisciplinary pediatric care team not only helps children get the medical care they need and deserve, we help families find hope and confidence. That means connecting you with local community resources and support groups, even helping you find a ride to your child’s appointments. Whatever the need, big or small, we’re here to support every member of the family throughout your child's care journey.