From Diagnosis to Healing, We’re Here
From the moment you first cradle your baby in your arms, you’re willing to give them the world. And we’re here to help you do so with the best care.
Our team of pediatric plastic surgeons will collaborate with you, your family and other members of your child’s care team, including pediatricians, pediatric neurosurgeons and physical therapists, to create a treatment plan that’s best for your child.
At AdventHealth for Children, you’ll have access to the latest advances in treating craniosynostosis, including surgical care, therapy and minimally invasive approaches. And you’ll be supported at every turn by caring, dedicated professionals with the same goal in mind: helping your child thrive.
Understanding a Craniosynostosis Diagnosis
At AdventHealth for Children, we’re proud to offer the most innovative, evidence-based and proven treatments that lead to better outcomes. But even more important is that every decision we make centers around your baby. Each of our team members administers medicine and care from the heart.
We’ll use our experience, care and compassion to answer your questions and guide your family to the best treatment plan for your baby. Learn more about craniosynostosis and how we can help.
- What Is Craniosynostosis?
Craniosynostosis is a rare birth defect that affects one in every 2,200 live births. It happens when one or more of the joints in your baby’s skull fuse together before the brain finishes developing.
Although brain damage can happen in severe cases, early diagnosis and treatment can help ensure the very best results, including cognitive normalcy and an unaffected appearance.
Children with craniosynostosis may also experience problems with their eyes and ears.
- What Causes Craniosynostosis?
The short answer is that no one knows precisely what causes craniosynostosis. While there’s likely some genetic component, it's also possible that the condition is linked to how a baby was positioned in the womb. What’s important to remember is that there's nothing you did as a parent to cause this condition.
- What Are the Signs and Symptoms of Craniosynostosis?
Signs of craniosynostosis may be detected during pregnancy or immediately after birth, including:
- Bulge in baby’s soft spot
- No visible soft spot
- Raised ridge along the fused sutures in the baby’s skull
- Unusual head shape
Other problems can happen, depending on which of the sutures grow together. For example, a fused coronal suture may cause a baby's face to appear slightly twisted.
If your child’s doctors suspect craniosynostosis, a series of tests may be recommended to diagnose the condition and determine the severity — but we’ll be with you every step of the way.
If it’s determined your child is experiencing pressure on the brain as a result of this condition, surgery will be required as soon as possible. Your child will be in the compassionate, experienced hands of our surgeons.
Symptoms of increased intracranial pressure include:
- A bulging fontanelle (soft spot)
- Bulging eyes or inability to look upward
- Developmental delay
- Noticeable scalp veins
- Poor feeding
- Visual impairment
- How Is Craniosynostosis Treated?
The primary goal of surgery for craniosynostosis (cranial vault remodeling) is to increase the size of your baby’s skull to relieve the pressure on the brain. This surgery will also help create a normal head shape.
Most children require only one surgical procedure. However, in some cases, multiple procedures are necessary.
Both a plastic surgeon and neurosurgeon will be involved in your child’s care. The combined expertise of the plastic surgeon and neurosurgeon helps give your child the best results.
For healthy children with no other major medical problems, the risks of cranial vault remodeling surgery are minimal.
After surgery, the only visible scar will be in your child’s hairline, which is usually covered nicely as the hair grows and your child gets older.
Why Choose Us
At AdventHealth for Children, our team of plastic and reconstructive surgeons care for your child’s and family’s body, mind and spirit with comprehensive, compassionate care.