A woman holding her infant.

From Diagnosis to Healing, We’re Here

From the moment you first cradle your baby in your arms, you’re willing to give them the world. And we’re here to help you do so with the best care. 

Our team of pediatric plastic surgeons will collaborate with you, your family and other members of your child’s care team, including pediatricians, pediatric neurosurgeons and physical therapists, to create a treatment plan that’s best for your child.

At AdventHealth for Children, you’ll have access to the latest advances in treating craniosynostosis, including surgical care, therapy and minimally invasive approaches. And you’ll be supported at every turn by caring, dedicated professionals with the same goal in mind: helping your child thrive.

We’re here to help you find the right physician or a location that’s convenient for you.

Understanding a Craniosynostosis Diagnosis

At AdventHealth for Children, we’re proud to offer the most innovative, evidence-based and proven treatments that lead to better outcomes. But even more important is that every decision we make centers around your baby. Each of our team members administers medicine and care from the heart. 

We’ll use our experience, care and compassion to answer your questions and guide your family to the best treatment plan for your baby. Learn more about craniosynostosis and how we can help.

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What Is Craniosynostosis?

Craniosynostosis is a rare birth defect that affects one in every 2,200 live births. It happens when one or more of the joints in your baby’s skull fuse together before the brain finishes developing. 

Although brain damage can happen in severe cases, early diagnosis and treatment can help ensure the very best results, including cognitive normalcy and an unaffected appearance. 

Children with craniosynostosis may also experience problems with their eyes and ears.

What Causes Craniosynostosis?

The short answer is that no one knows precisely what causes craniosynostosis. While there’s likely some genetic component, it's also possible that the condition is linked to how a baby was positioned in the womb. What’s important to remember is that there's nothing you did as a parent to cause this condition.

What Are the Signs and Symptoms of Craniosynostosis?

Signs of craniosynostosis may be detected during pregnancy or immediately after birth, including:

  • Bulge in baby’s soft spot
  • No visible soft spot
  • Raised ridge along the fused sutures in the baby’s skull
  • Unusual head shape

Other problems can happen, depending on which of the sutures grow together. For example, a fused coronal suture may cause a baby's face to appear slightly twisted.
If your child’s doctors suspect craniosynostosis, a series of tests may be recommended to diagnose the condition and determine the severity — but we’ll be with you every step of the way.

If it’s determined your child is experiencing pressure on the brain as a result of this condition, surgery will be required as soon as possible. Your child will be in the compassionate, experienced hands of our surgeons.

Symptoms of increased intracranial pressure include:

  • A bulging fontanelle (soft spot)
  • Bulging eyes or inability to look upward
  • Developmental delay
  • Lethargy
  • Noticeable scalp veins
  • Poor feeding
  • Seizures
  • Visual impairment
  • Vomiting
How Is Craniosynostosis Treated?

The primary goal of surgery for craniosynostosis (cranial vault remodeling) is to increase the size of your baby’s skull to relieve the pressure on the brain. This surgery will also help create a normal head shape. 

Most children require only one surgical procedure. However, in some cases, multiple procedures are necessary.

Both a plastic surgeon and neurosurgeon will be involved in your child’s care. The combined expertise of the plastic surgeon and neurosurgeon helps give your child the best results.

For healthy children with no other major medical problems, the risks of cranial vault remodeling surgery are minimal. 

After surgery, the only visible scar will be in your child’s hairline, which is usually covered nicely as the hair grows and your child gets older.

Comprehensive Craniofacial Care

Craniosynostosis isn’t the only condition our team diagnoses and treats. We also help parents and families navigate related syndromes, including non syndromic and syndromic craniosynostosis.

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  • Craniosynostosis Syndromes

    Muenke Syndrome

    Muenke syndrome, also known as FGFR3-associated coronal synostosis syndrome, is a genetic disorder characterized by the anomalies if the skull and face. Gene mutations are the cause if these skull and face differences.

    Saethre-Chotzen Syndrome

    Saethre-Chotzen syndrome is a genetic disorder characterized by varied and broad skull, face, and limb anomalies. TWIST gene mutations are responsible for causing the early fusion of the skull.

  • Syndromic Craniosynostosis

    Syndromic craniosynostosis has a clear genetic cause. Children with this condition also have other health issues and concerns. Your child’s care team will work across disciplines to address your child’s needs from every angle.

    Apert Syndrome

    Apert syndrome, also called acrocephalosyndactyly, is a genetic syndrome characterized by anomalies of the skull, face and limbs. Gene mutations are responsible for causing the early fusion of the skull, hand and feet bones.

    Crouzon Syndrome

    Crouzon syndrome, also known as craniofacial dysotosis, is a genetic syndrome in which the seams of the skull fuse in abnormally. This affects the shape of the head and face. It is the most common type of syndromic craniosynostosis. 

    Pfeiffer Syndrome

    Pfeiffer syndrome, also known as acrocephalosyndactyly Type V, is a genetic disorder characterized by the anomalies of the skull, face and limbs. Gene mutations are responsible for causing the early fusion of the skull, hand and feet bones. Craniofacial differences are similar to those seen in Apert syndrome.

Doctor checking on Child.

Surgical Care You Can Count On

Our team of pediatric and reconstructive surgeons includes physicians who specialize in treating craniosynostosis. Find a surgeon near you and set your child on a treatment path that’s right for them.

Why Choose Us

At AdventHealth for Children, our team of plastic and reconstructive surgeons care for your child’s and family’s body, mind and spirit with comprehensive, compassionate care.